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They Deserve More Fact Sheet 2022
2021 Wrap Up/2022 Line Up
2021 Annual report
Institute Overview and Expertise

 The Institute has a rich history of sponsoring a wide range of events that promote collaboration, education andpartnership among member organizations as well as throughout the broader provider community. The Institute sponsors conferences and events that bring together leading authorities and accomplished professionals from across the country to share their experience and expertise in Illinois. The Institute also serves as a forum for member CEO’s to meet regularly to discuss current issues and learn from guest speakers and each other.   The Institute Coordinates regular events for key agency personnel such as CFO’s, Program Directors and Training Coordinators, where common issues are discussed among peers.

The Institute provides leadership and representation to statewide committees, task forces and submits comment on regulatory and legislative initiatives at the state and national levels. We Maintain collaborative and constructive relationships with appointed officials in key state agencies, serving as a resource and a problem-solving partner on issues of mutual concern.  The Institute Partners with other statewide organizations and stakeholders to achieve common goals and policy priorities that support our vision of a flexible,person-centered and adequately funded community service system that supports the diverse needs of all individuals with intellectual and developmental disabilities in Illinois.

The Institute on Public Policy for People with Disabilities is a private sector non-profit organization focused exclusively on disability policy issues in Illinois.  For over 2 decades, the Institute has been a trusted resource on issues and proposals impacting people with intellectual and developmental disabilities in Illinois.  Our national perspective and statewide experience and exposure position the Institute as an insightful,innovative and respected voice in the Illinois disability policy arena.

Areas of Expertise

  • Medicaid and Medicaid Waiver Funding
  • Emerging Service, Payment and Business Models in I/DD Services
  • Federal Policy Impacting I/DD Services
  • Emerging Funding Models and Value Based Reimbursement
  • History of Illinois Community Service System
  • Rights and Protection Issues Impacting People with Disabilities
  • Employment Models for People with Disabilities
  • Person-Centered Planning
  • Design of Community-Based Service and Support Systems
  • National Trends in I/DD Service Delivery
  • Data Design and Analysis

Task Force and Committee Appointments

  • Chair, Provider Committee of EEOPD
  • Chair, Staffing Committee; Ligas Oversight Committee
  • Chair, UIC Institute on Disability and Human Development Advisory Committee
  • Chair, Life Choices Team 4
  • Chair, Provider Implementation Committee for Sexual Education
  • Co-Chair, ANCOR Alternative Funding Models Committee
  • Employment and Economic Opportunity for People with Disabilities (EEOPD) Task Force
  • I/DD Home and Community Based Services Task Force
  • DD Regulatory Advisory Committee
  • DHS State Association Committee
  • Quality Score Card Committee
  • Steering Committee, Flexible Day Services Work Group
  • DD Assistive Technology Committee
  • Business Development Learning Collaborative Illinois Team Project Leader
  • Partner with CQL and IDHD in the ICDD HCBS-ACT Project

Kathy Carmody

THE institute

Kathy Carmody, CEO

Kathy Carmody, MSW is the CEO of the Institute on Public Policy for People with Disabilities.  Kathy has over 36 years of experience in the I/DD field, including direct support, clinical and executive management roles within community agencies.  Kathy was a Senior Fellow at the Taylor Institute where she played an integral role in the first-ever statewide project to evaluate the status and support needs of people with I/DD in nursing homes and DT programs. She directed the statewide SPICE Demonstration Project which was the first program to move people with disabilities from nursing facilities into community homes and served as the model for the CILA program.  Kathy worked statewide partnering with community agencies in the development of policy, programs and practice supporting community services through the Choice and Integration Project, as well as DHS contracts.  Kathy served as Chief of Staff at the Ray Graham Association where she worked for 23 years.

As CEO of the Institute on Public Policy for People with Disabilities, Kathy is involved in policy issues affecting people with I/DD and serves on a number of statewide committees and Task Forces, including chairing the Life Choices Team 4 charged with designing the person-centered planning process that will be adopted in Illinois. As CEO of the Institute, Kathy is involved in a wide array of policy issues affecting people with I/DD and serves on multiple committees and task force focused on policy development and implementation.  Kathy has presented widely on issues impacting the I/DD community including national conferences and statewide and regional events.  Kathy partners with CQL in presenting training events and webinars that have been attended by more than 5,000 stakeholders.   Under Kathy’s Leadership, Institute membership has increased 50% since 2015.  Collectively, Institute member organizations provide services and supports to nearly 20,000 children and adults with disabilities and their families.

Kathy is a graduate of the National Leadership Consortium on Developmental Disabilities at the University of Delaware and has a Masters Degree in Social Service Administration and Policy from the University of Chicago.


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